How does it work?
You share your views
No one understands bleeding disorder better than those who experience it or care for those that do every day. The survey has been developed to collect questions from those people who can tell us what issues they would like answered by research. The survey will be open from 24 April 2017
We review and analyse
We will review all submitted questions and identify those that haven’t already been answered by existing research and create a shortlist. This shortlist will be co-created with the steering group of the Priority Setting Partnership (PSP) and those people who have expressed an interest in being involved further.
We share the results
We will then hold a final workshop to agree the Top 10 questions which we will publish on this website and seek funding for the research required to answer them.
Who we are
The bleeding disorder PSP is managed by a steering group which includes patients representatives as well as health care professionals and other specialists.
What we do
The PSP steering group meets regularly and is responsible for overview and progress of this project. The group is made up of individuals who have experience of bleeding disorders. You can find a list of the members of the steering group and their profiles elsewhere on the site. We are committed to producing a prioritised list of 10 unanswered questions about bleeding disorders.
Who we work with
We work with number of partner and supporting groups who offer access to their members of who have an interest in bleeding disorders.