The James Lind Alliance Bleeding Disorders Priority Setting Partnership has a remit that covers both acquired and inherited bleeding disorders. Following the recent exercise to collect unanswered questions in both of these areas the steering group have now a ‘long list’ of unanswered questions in both types of bleeding disorder.
These have been taken from the survey completed in 2017 by families, professionals and members of the public. We now need to develop a ‘shortlist’ of these questions for consideration at the final priority setting stage. We are asking people with either acquired or inherited bleeding disorder, their families, relevant professionals along with organisations supporting families, to do this exercise and tell us which of the unanswered questions they think should be prioritised for research, and should therefore appear on the shortlist.
Please note all responses to this survey will be kept anonymous.
You’ll probably need a pen and paper for the next step